I was in the hospital resently for chest pains. Stress test was fine. Cardiologist suggested the stomach. Gastricentonologist says my stomach is fine. I have acid reflux. Four months ago I had an endoscope and the only thing he saw was inflammation of the stomach. My hospital follow up with my PCP was interesting. Both specaltist that saw me in the hospital were not my own doctors. My PCP pulled out her PDA and started looking up SLE. Every symptom that I have complained about for the last 2-3 years was there. I am seeing a Rheumatologist but am thinking of changing. My PCP keeps asking me what medication the Rheumatologist has put me on for SLE? What medicines are there

Sounds like what happened to me years ago. I was admitted to Intensive Care cause they thought it was my heart (I had all the symtoms). After many tests, they finally figured out it was my stomach. After being presribed Carafate (generic name: Sucralfate) it fixed it. My problem was caused by taking Excedrin every morning for my headaches. A few months later I read an article about a man who had the same symtoms suggesting heart problems and it was his stomach also. Carafate was a life saver to me. It seals the lining of your stomach.

If your SLE is affecting your stomach, the best option for you (at least in the short term) is likely to be a course of steroid medication such as prednisone (prednisolone). This suppresses stomach symptoms in the vast majority of patients. As staying on steroids in the long term is generally a bad idea, your rheumatologist should then try other treatments to bring the disease under control so that your steroid treatment can be reduced. These may include treatments designed to kill off aggressive immune cells which are attacking your own body, or infusions of healthy immune cells from a donor, aimed at resetting your body's immune response.

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