I was diagnose @ age 13 due to "butterfly rash". At 16 I was hospitalized with "lupoid pneumonia" and fell into coma due to high fever. @ 19 had failing kidneys,lost a baby @28 wks,and had seizures due to "lupus inflamation of brain tissue" I was given IV Cytoxan 1x month for 3 months.During prep for 4th tx I had no signs or symptoms. This was in 1993.I have had 4 children since.I do spill protein in urine, but no major kidney damage. ALL tests have been neg.I was last tested in 2001 Should I test regularly, how often? Can I stop listing as med prob for insurance reasons?

Actually no, when you are diagnosed with Lupus you have to understand that it is considered a life threatening incurable disease. You are experiencing what we all experience which is onsets and remissions. Even in remission, we still have the disease that lays dormant until the next illness, drug or stressful event flares us back up.

Insurance companies will get your histories from the health care facilities and people that treated you for your ailments. There are people out there that have this job! (watch the movie SICKO) Having this information they can refuse to ever insure you based upon falsification/fraud. At least under the health care law they have to take you under insurance once your pre-existing condition time is lapsed. Be safe and note everything so it doesn't nip you in the rear later. They will make you pay out of pocket expenses for everything they covered to the point they find you left that detail out, so it can be expensive as well.

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